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I-Motion’s mentor visite, the newest member of the AFM-Telethon galaxy

I-Motion is a new pediatric center for neuromuscular diseases which studies innovative biotherapies and is unique in Europe. The famous Canadian artist Garou, mentor of the Téléthon 2014 and mentor of I-Motion (Institute of Muscle-Oriented Translational Innovation.) came last Wednesday November 18th to launch it and meet with young patients, parents and healthcare professionals. Created … [Read more]

INGESTEM international congress and cell therapie

INGESTEM, I-Stem and biotherapies: 1st congress november 19-20th, 2015 INGESTEM, the national infrastructure in biology and health certified by the “Investissements d’Avenir” program (2012-2019), is the first French network of therapeutic innovations based on induced pluripotent stem cells (iPS) cells and human tissue engineering. Created by Professor Annelise Bennaceur-Griscelli, head of the Stem Cell Hub … [Read more]

Cell therapy in France & I-Stem: just 10 years from research to first clinical trials

I-Stem research laboratory was celebrating its 10 years in cell therapy R & D last October 27th in Paris: the right time to organize a press conference gathering international top medical opinion leaders in order to make an update on their pioneering work and the major steps forward to innovative stem cell therapies. Cross funded … [Read more]

A new step forward to gene-medicine for AFM-Telethon : to produce and cure

AFM-Telethon has decided to take up a new challenge: to produce gene-medicines from innovative biotherapies developed in the laboratories part of its Biotherapies Institute for Rare Diseases at an industrial scale, and to give patients suffering from rare genetic diseases access to them at a fair and contained price. With this in view, the association … [Read more]

Telethon 2015: 4 families, 4 stories, 4 fights against rare disease

Four families, all affected by rare diseases, will be the ambassadors of thousands, all gathered around the message: “The Fight of Parents, The Life of Children.” On December 4th and 5th, together with Marc Lavoine, the official ambassador of Telethon 2015, four families will represent the fight of the AFM-Telethon.  Séthi, Léo, Nicolas and Marie … [Read more]

New gene therapy success in a rare disease

French teams from CIC Biothérapie (AP-HP/Inserm), from pediatric hematology department of Necker Hospital for Children (AP-HP), led by Marina Cavazzana, Salima Hacein Bey Albina and Alain Fischer and from Genethon led by Anne Galy (Genethon/Inserm UMR-S951), and English teams from UCL Institute of Child Health and Great Ormond Street Hospital in London led by Adrian … [Read more]

Genethon Postdoctoral Program Spring 2014

Genethon is launching an International Postdoctoral Program to attract excellent scientists who wish to pursue their career in the field of gene therapy.Postdoctoral research positions are available for a period of three years … Download the Postdoctoral Program Spring 2014

Généthon, the French AFM-Telethon laboratory, becomes the first not-for-profit to obtain authorization from ANSM to be a pharmaceutical manufacturer

Généthon, the AFM-Telethon laboratory, has received the authorization delivered by the National Agency for Drug Safety (ANSM) to become a pharmaceutical manufacturer. Its production center, Généthon BioProd, is now authorized to produce drugs for innovative treatments. This is a first for a laboratory created by an association of patients and financed thanks to the generosity … [Read more]

Myotubular Trust is supporting Généthon in developing gene therapy for Myotubular myopathy

The European charity Myotubular Trust announces its support to the development of a pre-clinical gene therapy trial for myotubular myopathy, a project co-ordinated by Dr. Anna Buj-Bello at Généthon (Evry, France). Read the press release

AFM-Téléthon and the National Seed Fund have joined forces

CDC Entreprises, a subsidiary of Caisse des Dépôts and a future bpifrance1 entity, has been mandated by the French government to manage the FNA as part of the Investing in the Future Programme (Programme d’Investissements d’Avenir). It is collaborating with AFM-Téléthon (French muscular dystrophy association organising French Téléthon), an association of patients and parents of patients, to help introduce … [Read more]