News
RSS feedTelethon 2012: 81,065,239€. Thank you for having met the challenge
The counter of Telethon 2012 stopped at 81,065,239€. But your solidarity must not stop now. This year’s Telethon will remain the challenge of all challenges: the challenge of donors and volunteers in the face of crisis, the challenge of researchers and families in the face of disease … Together, we have tackled them, with determination and … [Read more]
To be the first non-profit stakeholder in the world of medicine
A few days before the launch of the Telethon on December 7th and 8th , the AFM-Telethon organised a press conference in Paris, presenting the Association’s challenges for 2013 and the researchers that it supports. Laurence Tiennot-Herment, President of the AFM-Telethon, recalls the challenge of the coming years: “To be the first consistent non-profit stakeholder in … [Read more]
Shinya Yamanaka, 2012 Nobel Prize in Medicine visits the I-Stem laboratory
On Friday November 9th, the Japanese physician and researcher, Shinya Yamanaka, who was awarded the Nobel Prize in Medicine on October 8th for his work on IPS cells (Induced Pluripotent Stem cells), visited the I-Stem laboratory in Evry. Shinya Yamanaka visited the Institute for Stem cell Therapy and Exploration of Monogenic diseases (I-Stem) that explores … [Read more]
The European Commission authorises the marketing of the first gene therapy treatment
The European Commission has authorised the marketing of Glybera, a treatment for lipoprotein lipase (LPL) deficiency. This is the first gene therapy treatment approved in the 27 countries of the European Union. LPL is a very rare disease caused by difficulties to metabolise fat particles in the blood. Until now, the only solution was a … [Read more]
Genethon receives the 43rd Prix Galien France
Genethon receives the 2012 French Galien Prize, in the category “medicines destined for rare diseases – cell therapy and gene therapy.” This is the first time that the Galien, one of the most prestigious scientific awards in the world – eight Nobel laureates are members of the jury – awards a laboratory created and developed … [Read more]
The Biotherapies Institute, a unique and exceptional task force
Launched in 2012, the Biotherapies Institute gathers the expertise of existing laboratories to accelerate and manage the development of innovative treatments for rare diseases. The AFM-Telethon has driven many research projects. With each Telethon, it has also developed laboratories, alone or in partnership with public institutions. To go faster and further, and to address the … [Read more]
