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New step towards the treatment of myotubular myopathy: gene therapy restores strength and prolongs lives in affected dogs

A team of researchers in France, led by Dr. Ana Buj-Bello (Genethon/Inserm) and teams at the University of Washington and Harvard Medical School in the United States, achieved a new step towards the treatment of myotubular myopathy by gene therapy. The researchers demonstrated the efficacy of administration of a therapeutic vector by a single intravenous … [Read more]

92,740,769 euros

The 30th Telethon edition reaches a final collection of 92,740,769 euros On 2nd and 3rd December 2016, the Telethon enthralled the public throughout France. The final collection figure now allows us to pursue the objective we wet ourselves 30 years ago : to find a cure ! Thank you !!!!

Prize4Life Announces $1 Million ALS Treatment Prize Winner

Prize4Life, a nonprofit organization whose mission is to accelerate the discovery of treatments and a cure for ALS (Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s disease), today announced the winner of its $1M Avi Kremer ALS Treatment Prize. The winners are the team of Drs. Martine Barkats and Maria-Grazia Biferi, from the Institute of … [Read more]

Call for proposals on remyelination projects

ARSEP Foundation and AFM-Téléthon will provide significant support (€ 300,000) for 2 to 3 scientific projects of high caliber for one year. Applications will be evaluated on their international competiveness and the originality of the proposed work. Research projects from basic science to clinical research will be considered, provided they have primarily focused on the … [Read more]

An inter-university degree dedicated to myology

As part of a partnership, Pierre et Marie Curie University – Paris VI (Pitié-Salpêtrière department) and AFM-Téléthon have created a university training whose lessons started when the Institut of Myology opened in 1996. Its recruitment has been national right from the beginning, also in June 2000, this university degree turned into an inter-university degree, currently bringing together Paris-VI … [Read more]

14th Société Française de Myologie days from November 23rd to 25th 2016 in Bordeaux

The 14th edition of Société Française de Myologie days (French Society of Myology) will gather researchers and clinicians on November 23rd, 24th and 25th in the ENSEIRB-MATMECA buildings in Bordeaux, France. These three days will be a special moment for professionals specialised in myology to discuss new topics on their field. Register now to the 14th SFM days … [Read more]

Frédéric Revah invited at Bpi Inno Génération-BIG

On May 25th and 26th, BPI France gathered thousands of entrepreneurs from all innovative sectors in Paris for the second edition of Bpi Inno Génération-BIG. This two day aimed at focusing on the innovations developed in fields like biotechnologies, ecology, transformation or export, and thinking about the stakes those innovations imply. As part of the theme … [Read more]

AIRE, key factor in the gender inequality for autoimmune diseases

Nadine Dragin, researcher among an Inserm/UPMC/CNRS (French National Center for Scientific Research)/Institute of Myology team co-directed by Sonia Berrih-Aknin and Rozen le Panse from the Institute of Myology, based in the Pitié-Salpêtrière Hospital, AP-HP, brought to light the central role of AIRE, a key factor for immune tolerance, in the gender inequality regarding autoimmune diseases. … [Read more]

Genethon: two new clinical trials for rare blood disorders

Thanks to its expertise in gene therapy vectors for correcting blood stem cells, Genethon is involved in two new clinical trials targeting cells: X-linked chronic granulomatous disease (also called CGD) and Fanconi anemia. X-linked chronic granulomatous disease (CGD), a rare immune system disease, is triggered by a mutation of the CYBB gene which reduces the activity of … [Read more]

The “1,000 chercheurs” project expands to schools abroad

Given the increasing success of the “1,000 chercheurs” project, interventions by researchers from the Biotherapies Institute are being deployed overseas. This week, students in year 10 and 12 from six different classes of the Lycée Français of the Mission Laïque Française in Agadir (Marocco) benefited the expertise of Jérôme Nicolas from Genethon by video-conferencing. On the menu? A … [Read more]