News

RSS feed

Focus researcher : Christophe Marcelle at Myology 2016

Christophe Marcelle (University of Lyon, University of Melbourne) discusses muscle development.    

Myology 2016, 5th edition from March 14 to March 18 in Lyon

With speakers from the Biotherapies Institute of Rare Diseases Among over 800 specialists and 70 experts in myology from the 5 continents, the researchers from the 4 laboratories (Genethon, Institute of Myology, I-Stem and Atlantic Gene Therapies) of the Biotherapies Institute of Rare Disease, will also be there and speak up throughout the week to present their newest … [Read more]

Telethon fundraising event 2015 : 80 251 183 euros. More than ever THANK YOU!

At the end of a 30-hour TV marathon, the Telethon counter displays an extraordinary result of 80 251 183 euros. This outstanding outcome shows the support from millions of French citizens to the Telethon fight against rare diseases, including from London, New-York, Budapest…A strong visual symbol  remains the enlightened Towers of different cities all over … [Read more]

I-Motion’s mentor visite, the newest member of the AFM-Telethon galaxy

I-Motion is a new pediatric center for neuromuscular diseases which studies innovative biotherapies and is unique in Europe. The famous Canadian artist Garou, mentor of the Téléthon 2014 and mentor of I-Motion (Institute of Muscle-Oriented Translational Innovation.) came last Wednesday November 18th to launch it and meet with young patients, parents and healthcare professionals. Created … [Read more]

INGESTEM international congress and cell therapie

INGESTEM, I-Stem and biotherapies: 1st congress november 19-20th, 2015 INGESTEM, the national infrastructure in biology and health certified by the “Investissements d’Avenir” program (2012-2019), is the first French network of therapeutic innovations based on induced pluripotent stem cells (iPS) cells and human tissue engineering. Created by Professor Annelise Bennaceur-Griscelli, head of the Stem Cell Hub … [Read more]

The Biotherapy Institute for Rare Disease committed again to the 2015 “ 1000 Researchers in Schools “

With a growing popularity, the “ 1000 Researchers in Schools “ event will take place again this year from November 2nd to 27th. It offers to teachers of hundreds of high schools and junior colleges in France and abroad to meet with a scientist working for the research laboratories funded by AFM-Téléthon, including a large … [Read more]

A new step forward to gene-medicine for AFM-Telethon : to produce and cure

AFM-Telethon has decided to take up a new challenge: to produce gene-medicines from innovative biotherapies developed in the laboratories part of its Biotherapies Institute for Rare Diseases at an industrial scale, and to give patients suffering from rare genetic diseases access to them at a fair and contained price. With this in view, the association … [Read more]

1,000 researchers in schools: the third edition

300 schools, more than 31,000 pupils reachable in 2015 … In view of the success of the previous editions, the AFM-Telethon and APBG join together one more to bring the world of research in schools during November. Again this year, all over France, science teachers of life and earth (SVT) of colleges and high schools … [Read more]

Telethon 2015: 4 families, 4 stories, 4 fights against rare disease

Four families, all affected by rare diseases, will be the ambassadors of thousands, all gathered around the message: “The Fight of Parents, The Life of Children.” On December 4th and 5th, together with Marc Lavoine, the official ambassador of Telethon 2015, four families will represent the fight of the AFM-Telethon.  Séthi, Léo, Nicolas and Marie … [Read more]

World premiere : differentiation of pluripotent stem cells to muscle fiber

This major breakthrough in neuromuscular diseases has just been published August 3, 2015 in Nature Biotechnology. “With our method, which does not require any genetic manipulation, we obtain muscle fibers which contract, but also satellite stem cells “ Olivier Pourquié, IGBMC and Harvard University (photo credit : Lola Vélasquez/IGBMC) More information with the original article  … [Read more]