News

RSS feed

Live from Myology 2016: Day 3

A summary of the third day at Myology 2016 in Lyon! Watch the testimonies of Nathalie Goemans (Hôpitaux Universitaires, Louvain), Aymeric Ravel-Chapuis (University of Ottawa), Géraldine Honnet (Biotherapies Institute for Rare Diseases) and Bernard Brais (McGill University, Québec).

Focus Researcher: Jerry Mendell at Myology 2016

Jerry Mendell told us about gene therapy in spinal muscular atrophy.

Focus Researcher: H. Lee Sweeney at Myology 2016

H. Lee Sweeney discusses the difficulty of having drugs approved for Duchenne Muscular Dystrophy.

Focus Researcher : Ichizo Nishino at Myology 2016

Ichizo Nishino explains his successful results for Nonaka myopathy (GNE).  

Myology 2016 – Day 3: Focus on therapeutics on trial or being developed for neuromuscular diseases

Wednesday opened on a symposium based on the development of innovative therapies, which make a new, booming type of medicine. Because the first drug candidates developed so far are only “prototypes”, researchers and doctors are building a strategy to tackle the disease on all fronts. Matthew Wood from Oxford University (UK) restored the expression of … [Read more]

Focus researcher : Matthew Wood at Myology 2016

Matthew Wood discusses the challenges of developing gene therapy

Live from Myology 2016: Day 2

A summary of the second day at Myology 2016 in Lyon! Discover the testimonies of Denis Furling (Institute of Myology),Claire Legay (University Paris Descartes), Laurent Schaeffer (NeuroMyoGène Institute), Bénédicte Chazaud (NeuroMyoGène Institute), Jordan Mecca (Institute of Myology) and Pascal Maire (Cochin Institute).

Focus researcher : Christophe Marcelle at Myology 2016

Christophe Marcelle (University of Lyon, University of Melbourne) discusses muscle development.    

Myology 2016, 5th edition from March 14 to March 18 in Lyon

With speakers from the Biotherapies Institute of Rare Diseases Among over 800 specialists and 70 experts in myology from the 5 continents, the researchers from the 4 laboratories (Genethon, Institute of Myology, I-Stem and Atlantic Gene Therapies) of the Biotherapies Institute of Rare Disease, will also be there and speak up throughout the week to present their newest … [Read more]

Telethon fundraising event 2015 : 80 251 183 euros. More than ever THANK YOU!

At the end of a 30-hour TV marathon, the Telethon counter displays an extraordinary result of 80 251 183 euros. This outstanding outcome shows the support from millions of French citizens to the Telethon fight against rare diseases, including from London, New-York, Budapest…A strong visual symbol  remains the enlightened Towers of different cities all over … [Read more]