Four families, all affected by rare diseases, will be the ambassadors of thousands, all gathered around the message: “The Fight of Parents, The Life of Children.”
On December 4th and 5th, together with Marc Lavoine, the official ambassador of Telethon 2015, four families will represent the fight of the AFM-Telethon. Séthi, Léo, Nicolas and Marie and their parents live throughout France. Despite different family situations and histories, they all have one thing in common: the fight against the rare disease that affects their child.
Over the coming weeks, continue to become acquainted with these parents, these children who have said NO to fatality and are determined to fight the disease.
Find them every week on these pages through reports, stories and anecdotes on the Telethon 2015 french web site.